My Primitive Cocktail is a place to discuss alternative treatments for HIV. I support those who only use "Western" medicine but wanted to share natural solutions that have worked for me. I encourage others to share their success stories with natural treatments including natural supplements, nutrition, acupuncture, Reike, etc. I want this blog to be a solution-focused site so please refrain from negative comments. We each have our own path.

Thursday, July 11, 2013

Update: 6.11.13

So sorry for not keeping my blog updated. I'll try and keep my story short. I'm still having the same symptoms & always in waves. I'll have 2 days feeling great! Then here it comes again. Then a week of feeling great, then here it comes again for 3 days to a week.

Picking up from the liver problem, my enzymes began going down little by little. They did a scan & everything was fine except for mild fatty liver. So they sent me to a liver specialist. He tested me for insulin resistants. My numbers on that test came back a couple numbers off. He didn't seemed concerned & told me if I lose a few pounds I'm fine. He didn't feel he need to see me again & put me on Vitamin E 400 twice a day.. and it totally brought my enzymes back to normal.  Okaaaay.. now what? Still feeling randomly crappy I've been through 6 months of crazy.

I ended up going on a cocktail because my doctor told me having a high viral load cane make you feel like Hell... So I was put on Complera. And of course now I'm undetectable & my numbers are great. BUT 3 months now & I still have the symptoms.

Let me go over my symptoms again: Achey & flu like, hive itchy, fatigue (loved my afternoon naps), random bad spells of diarrhea (there was a month or so I needed to take Imodium), once a week nights of insomnia along with frequent urination (I've lost 15lbs from peeing & diarrhea, but am holding at 227lbs was 243lbs), mild muscle cramps ache, nausea, and to small stuff like my left eye will water & my left nostril will drip ~ lol. ~ My symptoms are not as intense for some reason like they were 3 months back.

I was in Amsterdam in May. I felt great that whole week, but had one night I woke feeling majorly internally cold. I was shivering & couldn't get my hands or feet warm. I woke & felt better thank goodness. It happened once more the following week when I had returned home. After that I had them look at my Thyroid number. Sure enough, it was at 4.5 (the last number in the normal range before labeled having "Hypothyroidism"). My doctor put me on the lowest dose of Levothyroxine. I will say I don't feel sensitive to the cold like I was. 

Blah Blah Blah ~ I thought to myself 2 weeks ago that this is almost like an allergy (with the hives and all). So I researched Gluten intolerance. It fit like a puzzle more than anything has yet. It said men with Gluten intolerance seem to have liver problems more than woman (like non-alcoholic fatty liver), it can mess with your thyroid, and all my symptoms were listed. I was SO happy to finally hear something that could possibly be it. It's so scary when your blood work shows all normal but you KNOW something is VERY wrong. 

So I have an appointment with an Endocrinologist on Thursday, I'm going to make an appointment with the Cleveland Clinic allergist, and I'm having my doctor run a full panel to rule out any cancers. ~ So there you have it.. Any helpful thoughts or feed back appreciated on this.. Keep your fingers crossed it's as simple as going Gluten free. Which I might do anyway after reading up on how horrible it is for your body. Scary article on Gluten: